A Family’s Journey with Epilepsy

A Family’s Journey with Epilepsy

What do you do when your five-month-old child has seizures that are only happening at night?  For Screenwriter Marc Palmieri, it was hard to know whether the strained movements and odd facial expressions were a problem for his young daughter Anna, when she had been a...
Exploring the PDA Profile of Autism

Exploring the PDA Profile of Autism

What is PDA? New to the United States, Pathological Demand Avoidance (PDA) Syndrome is a small, distinct profile of autism characterized by avoiding demands and expectations due to an anxiety-based need for control. Our recent Parenting Impossible podcast guest, Diane...
How to Talk about Money

How to Talk about Money

Feeling anxious about money or wanting to avoid talking about it is normal. However, Wealth Psychology Expert and Coach  and Host of the award-winning Breaking Money Silence® Podcast Kathleen Burns Kingsbury explains that when we’re not talking about money,...
When You’re the Patient and the Parent

When You’re the Patient and the Parent

@RareDiseaseDad and DadVocate are the monikers for Adam Johnson who is now a rare disease patient advocate who hosts a series on MitoAction’s Energy In Action podcast called Parents As Rare that features stories of others like him who are affected by rare diseases....